So this will be my complete honesty blog. I will tell exactly how I feel and I won't candy coat anything.
So for those of you who know me, and wondered where I went for a while this is why.... Since I was a child I had many struggles with pain, bruising, dislocations, and many other things I did;t understand. The doctors tell you that you are depressed or bipolar, or just looking for attention.
When I was 14 I had my first major reconstruction of my right shoulder. A few days after I had the surgery,( it was much more involved than they thought it would be), I wanted to take a shower. So my mom bathed me, and my shoulder slipped and everything that was repaired tore. So later I had another reconstruction of the same shoulder. The DR. said it was bizarre and that I was very hyper mobile . For so long I had deep bruising that couldn't be explained, and headaches that would make you feel sick. They were always behind my right eye. My hips, shoulders, jaw,hands, feet, and the middle of my back were in so much pain all the time. The dislocations became a circus trick for the other kids, but it was degenerating my joints rapidly. By 10Th grade I was so excited to be on the cheer leading squad. I tried to ignore the pain, but it became to much. I left school in such a depression and had a tutor at the house to give me my homework. I didn't know how to explain things to people. I felt like such a burden and felt like I was always in a chiropractors office or DR. office. Living in chronic pain does cause depression. So for years they tried medication to treat the depression, but couldn't figure out about the pain.
When I was in my early 20's my pain started to take hold even more. I didn't want to complain but I couldn't explain it and neither could the doctors. My balance became unstable, and the dislocations were more frequent and painful. Since my father has MS I saw his neurologist. He did several tests, but there were no lessons on my brain. He did tests on my joints and flexibility. I even had some crazy test where they put small needles in your nerves to see the reaction. I was called back in for the diagnosis. Ehler Danlos syndrome hyper mobility type 3. At least there was an answer. I was counseled to see a genetic specialist about having children. I had already had two. This gean could be passed to my children. Unfortunately it was to late for that. I had passed the gean to our son Mason. I was counseled to not have anymore children because of the complications of carrying and delivering babies. I have two beautiful children and a very supportive husband. So I am blessed. My next post will help you to understand what has been going on for the past few years and how I am finding empowerment through this and the mission of increasing my knowledge and awareness so that I can help our son.