Lots of Changes

So I have been busy and a lot has been changing and happening in my life. I don't have a lot of access to the computer so it makes posting kind of difficult. I have a lot going on so I am going to just put my thoughts and feelings out there.

I have been reading A LOT of other EDS blogs and I am finding one common thing. Not all of them but a lot of them. There is a lot of negativity that seems to be coming along with having a disability. Each of our experiences are different, but our attitude really is a HUGE factor in how we deal with things. I don't say that "Attitude is Everything" to sound "cheesy" but it really is.

I make a conscious effort to go about my day without the "pity party". I know that having EDS stinks and at times we all can feel hopeless and lost, but there really is so much good that can come from this too.
For example.... As I read posts from other EDS bloggers I gain strength and realize that I am not alone. You also realize that A LOT!!!! of people were told that doctors didn't know what to do, or hear from people that "it is all in your head". It certainly is NOT all in our heads. This is a very real condition that we live with on a daily basis. It never goes away, and it is constantly on our minds.

I have a LOVE for shoes. My daughter has asked that when I die I leave everything in my closet to her LOL!! Well us shorter girls like heals. They are a little more difficult to wear when you have to think about not falling over because of your balance. Well I still wear them and they are fabulous LOL! So laugh and don't take everything so seriously.

I enjoy reading the posts about daily things that we as a group of people are doing. That's why I feel strongly about being honest and open about how I feel. So since I am on feelings .... Right now they are mixed. I am going through a BRUTAL MEAN divorce. Everything I have ever done to try to better myself is now being somehow twisted into something it is not.
FOR EXAMPLE..... After I knew that the opiate medications were starting to deteriorate my body I became proactive. Meeting with my Dr.'s and going into a medical detox seems pretty responsible. Now I am being played and it is being twisted because of divorce that I abused drugs???? This really bothers me. I do my best to remain positive. I have my moments that seem to become overwhelming, but I have a wonderful support system.

When all you know is pain you learn ways to block it out to a point. I know I have said it before, but My CVR machine is my power tool. I use that machine about everyday to stay focused for action and in a positive mindset. Our brains are so powerful and we have so much power to control different problems or symptoms we may be experiencing.

So I want to complain a little and I want to say thank you as well to my fellow EDS bloggers.
YES... we all hurt
YES... We feel tired of the treatments, plans, and experimental things
But let's try to stay positive because in the end YOU HAVE THE POWER INSIDE YOURSELF. We grow. We learn. We help each other stay on a path of positive healing and health.





Attitude is Everything... BE HAPPY